Adventist St. Thomas Hospice staff is committed to the patient and family rights listed below:
A. PATIENT RIGHTS
- The right to considerate and respectful care.
- The right to obtain current information concerning my diagnosis, treatment and prognosis in terms that I can understand.
- The right to receive information necessary to give informed consent to hospice treatment, with a full understanding that hospice care is not curative in purpose, but is designated to alleviate pain and discomfort and to relieve symptoms.
- The right to receive care provided under the direction of my personal physician and/or hospice medical director by staff and volunteers who are qualified.
- The right to have my values, preferences and way of life respected and incorporated into my plan of care. Adventist St. Thomas Hospice shall not impose the dictates of any value or belief system on me or my family.
- The right to participate in development and revisions of the plan of care and to have my caregivers involved in the planning and provision of care.
- The right to remain as comfortable as possible.
- The right to every consideration of privacy, security and confidentiality of information with regard to medical, personal and family matters.
- The right to refuse treatment to the extent permitted by law and to be informed of the medical consequences of such refusal. The right to revoke consent for hospice care.
- The right to voice grievances free from restraint, interference, coercion, discrimination or reprisal by or from hospice staff and administration.
- The right to be served without regard to race, color, national origin, gender, handicap, age, disease or sexual preference.
- The right to be involved in resolving conflicts about care or service.
- The right to chose whether or not to participate in research, investigational or experimental studies, or clinical trials.
- The right to have communication needs met ensure his/her participation in a prompt and orderly transfer to another level of care or organization and any financial benefit to the referring organization.
- The right to have his/her property respected.
- The right to be informed over the length of service of changes in charges not covered by Medicare/insurance.
- The right that your reports of pain will be believed and responded to quickly.
- The right to receive information about pain and pain relief measures.
- The right to have a concerned staff committed to pain prevention and management.
- The right to effective pain management.
- The right to make informed decisions about proposed and ongoing care and services.
- The right to formulate advance directives, as appropriate to the care and services.
- The right to be notified of the potential benefits, risks and effects of the care or services provided, their likelihood of success and problems.
B. FAMILY/CAREGIVERS RIGHTS
- The right to full information about the patient's condition and interpretations of changes as they occur.
- The right to communicate freely and fully with the physician and other members of the hospice care team and to participate in the development of the plan of care.
- The right to discuss all aspects of dying and death and related problems and needs with hospice team members.
- The right to privacy and time alone with the patient when desired.
- The right to express grief in my own way and the right to seek help in bereavement from the hospice team.
C. PATIENT REPSONSIBILITIES
- Provide a safe environment for the provision of care for the hospice team.
- Provide complete and accurate information regarding illness and treatment to the hospice team.
- Participate in and adhere to the hospice plan of care.
- Report any concerns about his/her understanding of the course of treatment or his/her ability to comply with instructions.
- Follow instructions he/she is given for performing a procedure or using a piece of equipment.
- Notify Adventist St. Thomas Hospice when a piece of rental equipment is no longer needed.
- Notify Adventist St. Thomas Hospice if he/she will not be home for a previously scheduled visit.
- Notify Adventist St. Thomas Hospice when there are unexpected changes in the patient's condition.
- Ask your nurse what to expect regarding pain and pain management.
- Discuss pain relief options with your nurse.
- Work with your nurse to develop a pain management plan.
- Ask for pain relief when pain first begins.
- Help your nurse assess your pain.
- Tell the nurse if your pain is not relieved and about any worries you have about taking pain medication.
- Expresses any concerns about their ability to follow proposed care plan or course of treatment.
- Verbalizes understanding and acceptance of consequences when refusing to follow the plan of care, services or treatment.
D. The Agency will protect and promote the exercise of these rights.
E. The patient and/or responsible significant other will be informed of these rights both verbally and in writing in advance of furnishing care to the patient or during the initial evaluation visits before the start of treatment.
F. The Agency will investigate complaints made by a patient or the patient's family or guardian regarding treatment or care that is (or fails to be) furnished, or regarding the lack of respect for the patient's property by anyone furnishing services on behalf of the agency and will document both the existence of the complaint and the resolution of the complaint.